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Jeff Jackson's avatar

Dear Sara Redondo, MD:

I so value your attitude and expertise!

I think the reason the woman you cited had so much better care for her ovarian cancer--and why she recovered, is precisely because she thought of it herself! And then she demanded it, or created it.

I'm so sorry your mom never got that level of care.

And I'm so sorry for what you went through as a result of losing your mom.

I too have noticed that problem with healthcare.

But a few times, I was fortunate.

I was diagnosed in high school (~1970) with a painful inflammatory musculoskeletal disease.

Initially I was laid up in bed, unable to walk, for an entire summer, 2 1/2 months. But ironically, that was, I believe, actually caused by another problem, and was only sciatica.

The Dx doesn't really account for all the problems I've had along the way.

(Ankylosing Spondylitis)

In the next few years, I had a few more episodes where I got laid up for much shorter periods (3 days to a week), but I eventually learned how to avoid that. I haven't actually been laid up in bed since.

10 years later, in 1980, I was awakened one night by severe muscle spasms in my mid-back. I wasn't able to go back to bed, it was too painful to even try to lay down.

I had just started back to college when that happened, after a 7 year absence. I was also working full-time while attending college full time.

That scenario has repeated every night since, for over 45 years. Pain wakes me up after a maximum of 2 hours of sleep.

When it started, for the first 5 years, I got by the best I could with warm showers and over the counter analgesics. (I cannot tolerate aspirin or NSAIDs.)

In 1985, when I was in 2nd year of grad school ( I studied medicine & neuroscience), I reached a point where I couldn't deal with the pain any more.

I didn't have health insurance (because I was on Fellowship), so I went to the Student Health Clinic.

The next year is a long story, but I was advised to leave school to get a job with benefits (healthcare) so I did. (The doctors had planned expensive & extensive surgery, which they ended up not doing.)

At any rate, I ended up seeing a pain mgmt doc who started as a Psychiatrist. Because of that, he was just as concerned about me living a rewarding, fulfilling life as he was at treating my pain with meds!

Unfortunately, I had to move after a few years (for job), and it took a number of years to find another doctor like him, but eventually I did. He helped me to "have a life," even though every day was filled with excruciating pain.

(In addition to severe muscle spasms, which by now have spread down my legs to feet--mostly just extensor muscles, I also have pain in muscle attachments. There are a few places that are chronic, but at any time, any joint can flare up & become unusable due to inflammation of muscle attachments (estheitis).

As long as i get my "2 hours of sleep," I'm good!

(I tell my wife that often.)

And I've since learned to treasure the time I'm awake during the night. I accomplish thinking that is different from any other time, and sometimes I learn new things (I read, watch TV History & Discovery channels, etc).

But, I have been very fortunate in my my life. I am truly blessed.

I have truly lived a life that is "larger than life," and I know it's because of my attitude, but it would NOT have been possible without these 2 doctors that I was fortunate to meet. They emphasized "quality of life" AND helping to manage severe pain.

(Unfortunately, the 2nd doctor has been unavailable to me since 2010, and he has since acquired Parkinson's Disease. He cannot practice any more, so I feel for him. I know how dedicated he was.)

I am "just getting by" with regard to pain management, but I AM getting by.

This "opioid crisis" has been especially difficult for patients (like me) with intractable chronic pain.

Especially in the town where I live, but I digress.

This is about how blessed I am, and my life!

And how doctors like YOU are so needed. I hope your attitude and philosophy will affect other doctors, and cause them to follow in your footsteps!

I have many talents which I have developed for the purpose of helping others.

I'm now a Copywriter, and I recently focused my niche. Specifically, I'm using all my training, experience and my God-given "superpowers" (empathy & sincerity) to write for Healthcare, Medical Device & Biotech firms.

I'm advertising myself as the Renaissance Copywriter on LinkedIn.

My diverse expertise sets me apart from others (along with my positive and non-judgemental attitude.)

I also write on my 2 substacks, the first is Jeffro's Wellness Insights.

Jeffro55.substack.com

The 2nd is about teaching people how to program their subconscious to be successful at anything they desire.

BrainEngage.substack.com

I still love helping people, it's my primary mission in life!

So, I first want to thank you for being so generous by practicing your trade of "whole people" medicine, and sharing your wisdom, and all the other things you're doing.

(Unfortunately, at this time I cannot afford to be a paid subsciber to your "inner circle" of people who get a preview to your book.)

But, if it's free, I'll subscribe to your Substack.

The bottom line is ...

If you EVER need any help with writing, or any other skills I have, please, please contact me, I would be excited to help you!

I want everyone to know about your "whole person" approach to medicine & health!

(Sorry for the looooong comment!)

Sincerely,

>>"Jeffro"

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Charisse Tyson's avatar

What a wonderful post. I plan on being one of Kristina's success stories one day. I hope I get to be a beta reader for Sara's book.

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